Josie Griffin, 2, was diagnosed at birth with Cystic Fibrosis.
Since that time , her parents, Jacob and Rachel Griffin, have been active in raising awareness and funds toward a cure. May is Cystic Fibrosis Awareness Month and their family is busy getting ready for a Great Strides Walk for Cystic Fibrosis to be held in the Wisconsin Dells area on Sunday, May 2 and organizing other fundraising events in the area. The walk is to raise funds for the Cystic Fibrosis Foundation (CFF). "In organizing this walk we want to increase awareness of what CF is and how encouraging the research is for people with CF. Our goal is to have 200 walkers take part. As you can see below there is an overwhelming amount of support for our cause and we'd be honored if even more would join us that day," Rachel Griffin said.
Registration begins at 9:30 a.m. The walk starts at 10:30 a.m. at the Original Wisconsin Ducks (green and white) and goes to the Lake Delton Culver's, about 3.3 miles, where walkers may treat themselves to a complimentary dish of custard. If they want to walk back to the Ducks they may, but the Ducks are providing rides back, too.
Other planned events and fundraisers include these:
n Mount Olympus has graciously offered to hold a Family Fun day for an entry fee of $6 (+ tax) for the day in their water and theme park. Each admission includes a $1 donation to the CF Foundation.
n Make an appointment with PS Cuts, Wisconsin Dells, or The Clip Joint, Lake Delton, and get a purple hair extension starting in April and throughout most of May. When someone asks you about it, this helps increase awareness in an easy way.
n In addition to a pin-up campaign going on now, the Lake Delton Culver's will again help out with a Day of Giving. This will be held on Tuesday, May 18 ... make plans to eat out that day. Culver's will donate 10 percent of everything it takes in that day to CFF.
n You may start noticing donation jars around town. Visit Gilly's Island, Zinke's, Mobil Travelmart, Subway, Walgreens and other businesses in the area and seek out the donation jars with Josie's picture on it.
Cystic fibrosis is a devastating genetic disease that affects tens of thousands of children and adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. The CF Foundation is currently funding 30 studies. Two drugs are very promising, treating the defect that causes Cystic Fibrosis, and have clinical trials with participants with the same defect as Josie. To learn more about CF and the CF Foundation, visit www.cff.org.
Josie endures multiple treatments daily to combat the effects of CF. Josie takes enzymes prior to eating to help absorb the nutrients; she takes daily breathing treatments and spends a minimum of 30 minutes a day in her vest, which is designed to help break up the thick mucus that collects in her lungs. Josie is in good health. She continues to struggle with weight gain and has had to add an inhaler and a daily breathing treatment to aid in her lung function, but overall she is healthy. She is very active and challenging. Josie doesn't like her treatments. Most days you'll find her running the other way when asked to put her vest on, or once she's in it trying to turn it off. The Griffins really can't blame her. She has spent the equivalent of just over a week's worth of time in that vest this past year.
To learn more about Josie's team Go Go Jo visit the Web site at: http://www.cff.org/Great_Strides/RachelAndJacobGriffin.